Pompe Disease

Late one night about a year ago, I was watching a Discovery Health Channel report on a child with a very similar picture of the Asian child and the elderly lady I have mentioned above. This show caught my attention. I said to myself I wonder if this child in the Discovery Health Channel show had flu or colds at the beginning of the picture of the disease, and right after I questioned myself, the narrator said that the only thing this child had at the beginning were flu symptoms which got gradually worse. The parents took the child everywhere searching for the cure. Finally, they ended up at the Mayo Clinic and after a lot of testing they concluded that this disease has a name but no cure . They called it POMPE DISEASE. This child was never cured. Now she is wheelchair-bound and unable to walk. Apparently now she is in her early twenties and she has a foudation for Pompe disease. We tried to contact her but we had no response. I guess, after you have traveled the world to find a cure anybody that comes along with promise of a cure will sound like a non reliable source. On the contrary, if I would be in this situation I would try anything. I have great respect for science, but the human body is so complicated. Sometimes the cure might be in your own back yard or in your kitchen cabinet with natural herbs, or in the cases I narrated above, using an ancient technique such as acupuncture. I often tell my patients you can’t ignore 4ooo years of wisdom. Nothing would survive this long if indeed it is hokus-pokus, as some people have described acupuncture. My personal opinion about this condition is that the body has reacted with weakness , pain and sometimes numbness as a possible post-viral reaction that has shocked the system. Finding the way to wake up the system is the question. I think the patients I described above have successfully reacted to this awakening.

I was watching Fox and Friends/Fox News , and I heard about a movie called  "Extraordinary Measures" based on the book “Chasing Miracles” which is the story of a couple searching for the cure of Pompe disease which has crippled two of their children. Below is an e-mail I composed to send to the parents, Mr. and Mrs. John Crowley, regarding Pompe Disease. But I don’t know how to get their e-mail address, so I decided to put it in my blog to get this information to them and to the general public who may know someone with this condition.

To Mr. and Mrs. John Crowley,


Hi, my name is Amy Gonzalez, I am a Registered Nurse, Registered Physical Therapist and Licensed Acupuncturist I have more than 30 years of experience in the health field. I have a clinic in Caldwell NJ, about 3 1/2 years ago I come up with a case of a child with similar symptoms as Pompe Disease. She had weakness, severe pain in the legs and was diagnosed with a rare case of polyneuropathy, polyneuritis, polymyalgia and the doctors could not explain why. This child come to our clinic for pain management and strengthening exercises to the lower extremities. I asked the mother of this 7-year-old child how this started and she said few months before this happened the child had a very bad case of the flu. Since the mother was of Chinese origin I was able to speak to her easily about acupuncture . The mother spoke with the child and since the child's pain was so unbearable they agreed -- and the child got treated with acupuncture that same day. The next visit I saw the child smiling and said "Do it again!' I was shocked to hear this from a young child, then the mother interrupted her and told me that she slept so well the night she receive the treatment and she felt stronger and the pain subsided, she subsequently received 4 more treatments then I discharged her because her symptoms had subsided.

About a year ago I was watching the Discovery Health Channel and saw a very similar case, and just when I was wondering if this case also had the history of a flu or flu-like symptoms prior to the onset of symptoms of weakness, pain, and numbness, the narrator said, that this case also manifested flu symptoms at the beginning of the disease. This was when I first learned about Pompe Disease. They finally gave a name to this disease. This caught my attention, and 8 months ago I saw a lady with a similar condition: unable to walk, with numbness in the legs and severe weakness – and with the same diagnosis of polyneuropathy, polymyalgia, polyneuritis etc also of unknown origin or etiology. Basically they did not know what it was. She also had flu symptoms before she presented with this gradually debilitating weakness, received the same treatment as the child previously mentioned, and was walking by her third treatment. Her daughter was in tears when she saw this. She was also discharged shortly after walking on her own.

I was talking about these 2 cases since last year and I will be writing about these cases and other successes using natural methods on the internet.

I was watching Fox news this morning and I heard again about Pompe Disease -- and that is why I am writing to you. The way I look at it is very simple: Something injured the lung channel. The transmission of O2 has diminished, the glycogen metabolism is impaired and the muscles and the liver are no longer working efficiently. This is contrary to what is being said about this picture. You see, you need O2 for this chemical reaction to happen. If the O2 supply is diminished at the muscle level, then, the glycogen will not be metabolized. In conclusion, I think this is a post-viral reaction that has injured the lungs and may not be a genetic problem. The two cases I successfully treated were by removing the blockages in the lung channel and treating the post-viral case, which seemed to be the cause of the problem. I could be wrong, but the more I think about it I could also be right. If you ever want to contact me, you may do so by phone: 973 228 8548.


Amy